Winnipeg

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Fighting Muscular Dystrophy

Firefighters are raising money for Muscular Dystrophy Canada. For three nights, they’ve camped out on top of Fire Hall No. 4, in Osborne Village.

On March 14, three days into their campaign, they raised $27,000.

“They always bump the goal,” says firefighter-paramedic Rhema Idonije. “Every bill just helps, even if we don’t reach, it’s still 80 or 90 grand more than they started with. Every bit helps.”

This is the campout’s tenth year. Idonije says he’s been involved for five years, and has been on the roof for three.
Barb Yanciw lowers a boot over the side of Fire Hall No. 4 in Osborne Village to collect donations for Muscular Dystrophy Canada.
Barb Yanciw is the Coordinator of Annual Campaigns and Firefighter Relations for Manitoba and Saskatchewan.

“I feel like the biggest piece is I actually get to help people, you know? I feel like I’m actually making a difference in the community,” says Yanciw.

Yanciw says that because of the funded research, lots of clients are living into their 20s. According to the Muscular Dystrophy Association, until recently, boys with muscular dystrophy didn’t survive much beyond their teen years.

Now, life expectancy is increasing and survival into the early 30s is becoming more common.

Videos

Firefighters for MD Interview Story
Rhema Idonije and Barb Yanciw speak on behalf of their rooftop campout to raise money for muscular dystrophy.
Muscular Dystrophy Green Screen
A green screen by David Boulet, covering stats and facts about muscular dystrophy and related diseases.
Spinraza Rant
A rant in regard to a drug called Spinraza that's used to treat spinal muscular atrophy.
Crystal Rondeau and Spinal Muscular Atrophy
Crystal tells her story about living with SMA 2.